Harvard Medical School Portugal Program in Translational Research and Information António Vaz Carneiro, MD, PhD, FACP Director, Health Information HMSPT University of Lisbon School of Medicine Rationale and Aims of the Program • Systematic production of information concerning health for the general public, medical students and health professionals • Post-graduate medical training including Junior and Senior Clinical Research and Career Development Awards • A research program directed at strengthening the national capacity to produce new translational and clinical knowledge. Overview of HMSPT • • • • • • • • • 18 Partners 5 Years Program 42 Million Euros budget Over 50 Projects to be supported for the next 4 years 12 Clinical Research Projects 32 Information Production and Assessment Projects 10 Junior Research Awards 4 Senior Research Awards More than 20 Workshops, 4 Retreats and 4 Symposiums. Portuguese institutions at HMS-PP • All the 7 Portuguese Medical Schools • All the 5 Biomedical Research Associate Laboratories • Other leading research units, namely those not integrated in Associate Laboratories • National Institute of Health (INSA) • Knowledge Society Agency (UMIC; Ministry of Science, Technology and Higher Education) • Ciência Viva – Agency for Scientific and Technological Culture • DGS - Directorate-General of Health (Ministry of Health) • ACS - High Commissariat for Health (Ministry of Health) • INFARMED - National Authority for Medicines and Medical Devices • … Target populations • The general public • Students/teachers in the health sciences • Physicians and allied health professionals Program dimensions 1. Public awareness/information of health topics 2. Education for health sciences students/teachers 3. Clinical support and CME/updating tool for health care professionals. Public awareness of health topics • Description of most common medical disorders • Novel/relevant findings in different medical fields • Health news • Interactive area • Annual Health Congress • … Public requirements and targets • Minimal literacy: 9th grade • Target populations: • University students and teachers outside health • Secondary teachers and late years students • Liberal professions • Journalists • All Portuguese speaking countries • Open 24/7 Example of contents for the public • • • • • • • • • • • Introdução O que é um vírus da gripe? O que é a gripe suína e o que é uma pandemia? Os sintomas da gripe H1N1 são diferentes dos sintomas da gripe comum? Como é diagnosticada a gripe H1N1? Até que ponto pode ser grave e contagiosa uma pandemia de gripe? O que aconteceu nas pandemias do passado? Encontra-se disponível uma vacina? Como é tratada a gripe H1N1? Será que necessito de uma provisão de Tamiflu? …… Ficheiro em pdf descarregável (em todo ou em partes) Example of contents for the public • Q & A document • click question, answer appears • Animation video of the same content • click question, answer in audible format • Dowloadable (for “Magalhães”for example) and destined also to home display. Q & A document O que é a gripe suína? A “gripe suína” e a “gripe das aves” referem-se a vírus da gripe que infectaram originalmente apenas porcos ou aves, mas que sofreram alterações genéticas que lhes permitem agora infectar e causar doença nos seres humanos. Algumas pessoas utilizam o termo “gripe suína” para se referirem à doença causada pelo H1N1. Education for health sciences students • Construction of an interactive learning platform composed of modules on topics relevant to health sciences • Adaptation of existing interactive learning tools from national and international institutions. Example of contents for medical students • • • • • • • Teaching/learning materials Interactive modules E-learning Support materials for classes/courses Availability of thesis Blogs and other social networks ….. Clinical decision supporting system for health care professionals • A web based system of advanced clinical information • A webpage for continuing medical education containing information or courses provided by national institutions • A webpage devoted to an “on-line journal club” within the different clinical areas. • … Example of contents for health care professionals • • • • • • • Harvard and Portuguese contents Open journal-club BMJ system DynaMed UpToDate E-learning ….. Assessment of Health Information Usage by the Public—Internet-Based Information Number of unique visitors each month Number of pages viewed per visit Number of minutes spent per visit Total number of pages viewed and minutes per month • Number of times visitor linked to each of the affiliated institutions’ sites • Periodic surveys of users’ experience with either their Internet or telephone experience. • • • • Organizational chart for the HMS-Portugal Program